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Title: A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy
Other Titles: Estudio piloto de diseño de un sitio web para el bienestar de cuidadores de niños con parálisis cerebral
Author: Boixadós Anglès, Mercè  
Gómez Zúñiga, Benigna  
Hernández Encuentra, Eulàlia
Guillamón Cano, Noemí
Redolar Ripoll, Diego
Pousada Fernández, Modesta  
Muñoz Marrón, Elena  
Armayones Ruiz, Manuel  
Others: Universitat Oberta de Catalunya. Internet Interdisciplinary Institute (IN3)
Keywords: online intervention
well-being
caregiver burden
quality of life
cerebral palsy
Issue Date: 15-Apr-2014
Publisher: Universitas Psychologica
Citation: Boixadós Anglès, M., Gómez Zúñiga, B., Hernàndez Encuentra, E., Guillamón Cano, N., Redolar Ripoll, D., Pousada Fernández, M., Muñoz Marrón, E. & Armayones Ruiz, M. (2014). A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy. Universitas Psychologica, 13(4), 15-28. doi: 10.11144/Javeriana.UPSY13-4.psdw
Also see: https://revistas.javeriana.edu.co/index.php/revPsycho/article/view/5132
Abstract: The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers' burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers' needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the 'peer-to-peer' and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy.
Language: English
URI: http://hdl.handle.net/10609/109853
ISSN: 2011-2777MIAR
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