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Title: | A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy |
Other Titles: | Estudio piloto de diseño de un sitio web para el bienestar de cuidadores de niños con parálisis cerebral |
Author: | Boixadós, Mercè Gómez Zúñiga, Benigna Hernández Encuentra, Eulàlia GUILLAMON, NOEMI Redolar-Ripoll, Diego Pousada, Modesta Muñoz Marrón, Elena Armayones, Manuel |
Others: | Universitat Oberta de Catalunya. Internet Interdisciplinary Institute (IN3) |
Citation: | Boixadós Anglès, M., Gómez Zúñiga, B., Hernàndez Encuentra, E., Guillamón Cano, N., Redolar Ripoll, D., Pousada Fernández, M., Muñoz Marrón, E. & Armayones Ruiz, M. (2014). A pilot study designing a website to enhance the well being of caregivers of children with cerebral palsy. Universitas Psychologica, 13(4), 15-28. doi: 10.11144/Javeriana.UPSY13-4.psdw |
Abstract: | The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers' burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers' needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the 'peer-to-peer' and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy. |
Keywords: | online intervention well-being caregiver burden quality of life cerebral palsy |
DOI: | 10.11144/Javeriana.UPSY13-4.psdw |
Document type: | info:eu-repo/semantics/article |
Version: | info:eu-repo/semantics/publishedVersion |
Issue Date: | 15-Apr-2014 |
Publication license: | https://creativecommons.org/licenses/by-nc-nd/2.5/co/ |
Appears in Collections: | Articles cientÍfics Articles |
Files in This Item:
File | Description | Size | Format | |
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Boixados_UP_Pilot_Study.pdf | 2,06 MB | Adobe PDF | View/Open |
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