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http://hdl.handle.net/10609/125306
Title: Give more data, awareness and control to individual citizens, and they will help COVID-19 containment
Author: Nanni, Mirco
Andrienko, Gennady
Barabási, Albert-László
Boldrini, Chiara
Bonchi, Francesco
Cattuto, Ciro
Chiaromonte, Francesca
Comandé, Giovanni
Conti, Marco
Coté, Mark
Dignum, Frank
Dignum, Virginia
Domingo Ferrer, Josep
Ferragina, Paolo
Giannoti, Fosca
Guidotti, Riccardo
Helbing, Dirk
Kaski, Kimmo
Kertesz, Janos
Lehmann, Sune
Lepri, Bruno
Lukowicz, Paul
Matwin, Stan
Megías Jiménez, David  
Monreale, Anna
Morik, Katharina
Oliver, Nuria
Passarella, Andrea
Passerini, Andrea
Pedreschi, Dino
Pentland, Alex
Pianesi, Fabio
Pratesi, Francesca
Rinzivillo, Salvatore
Ruggieri, Salvatore
Siebes, Arno
Torra, Vicenç
Trasarti, Roberto
van den Hoven, Jeroen
Vespignani, Alessandro
Others: Universitat Oberta de Catalunya (UOC)
Keywords: personal data store
contact tracing
mobility data analysis
covid-19
Issue Date: 14-Apr-2020
Publisher: Transactions on Data Privacy
Citation: Nanni, M., Andrienko, G., Barabási, A.-L., Boldrini, C., Bonchi, F., Cattuto, C., Chiaromonte, F., Comandé, G., Conti, M., Coté, M., Dignum, F., Dignum, V., Domingo Ferrer, J., Ferragina, P., Giannoti, F., Guidotti, R., Helbing, D., Kaski, K., Kertesz, J., Lehmann, S., Lepri, B., Lukowicz, P., Matwin, S., Megías, D., Monreale, A., Morik, K., Oliver, N., Passarella, A., Passerini, A., Pedreschi, D., Pentland, A., Pianesi, F., Pratesi, F., Rinzivillo, S., Ruggieri, S., Siebes, A., Torra, V., Trasarti, R., van den Hoven, J. & Vespignani, A. (2020). Give more data, awareness and control to individual citizens, and they will help COVID-19 containment. Transactions on Data Privacy, 13(1), 61-66.
Abstract: The rapid dynamics of COVID-19 calls for quick and effective tracking of virus transmission chains and early detection of outbreaks, especially in the "phase 2" of the pandemic, when lockdown and other restriction measures are progressively withdrawn, in order to avoid or minimize contagion resurgence. For this purpose, contact-tracing apps are being proposed for large scale adoption by many countries1. A centralized approach, where data sensed by the app are all sent to a nation-wide server, raises concerns about citizens' privacy and needlessly strong digital surveillance, thus alerting us to the need to minimize personal data collection and avoiding location tracking. We advocate the conceptual advantage of a decentralized approach, where both contact and location data are collected exclusively in individual citizens' "personal data stores", to be shared separately and selectively (e.g., with a backend system, but possibly also with other citizens), voluntarily, only when the citizen has tested positive for COVID-19, and with a privacy preserving level of granularity. This approach better protects the personal sphere of citizens and affords multiple benefits: it allows for detailed information gathering for infected people in a privacy-preserving fashion; and, in turn this enables both contact tracing, and, the early detection of outbreak hotspots on more finely-granulated geographic scale. The decentralized approach is also scalable to large populations, in that only the data of positive patients need be handled at a central level. Our recommendation is two-fold. First to extend existing decentralized architectures with a light touch, in order to manage the collection of location data locally on the device, and allow the user to share spatio-temporal aggregates - if and when they want and for specific aims - with health authorities, for instance. Second, we favour a longer-term pursuit of realizing a Personal Data Store vision, giving users the opportunity to contribute to collective good in the measure they want, enhancing self-awareness, and cultivating collective efforts for rebuilding society.
Language: English
URI: http://hdl.handle.net/10609/125306
ISSN: 1888-5063MIAR
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