Please use this identifier to cite or link to this item:

http://hdl.handle.net/10609/93309
Full metadata record
DC FieldValueLanguage
dc.contributor.authorLupón i Bas, Marta-
dc.contributor.authorArmayones Ruiz, Manuel-
dc.contributor.authorCardona Torradeflot, Genís-
dc.date.accessioned2019-04-17T08:33:40Z-
dc.date.available2019-04-17T08:33:40Z-
dc.date.issued2018-12-01-
dc.identifier.citationLupón, M., Armayones, M., & Cardona, G. (2018). Quality of life among parents of children with visual impairment: A literature review. Research in Developmental Disabilities, 83, 120-131. doi:10.1016/j.ridd.2018.08.013en
dc.identifier.issn0891-4222MIAR
-
dc.identifier.urihttp://hdl.handle.net/10609/93309-
dc.description.abstractAims: To describe the experience of parents caregiving children with visual impairment (VI), to determine how their quality of life (QoL) is assessed, and to summarize QoL indicators through a review of the literature. Methods: A thematic search through PubMed, PsycINFO, ProQuest and ERIC databases was performed of articles published in English in peer-reviewed journals between 1996 and 2016. Publications were included if they referred to both children or adolescents with VI and their parents, or the family context. The complete selection process disclosed 37 papers suitable for review. Results: Researchers mainly used ad hoc interviews and questionnaires to investigate this topic. Two specific tools, the CarCGQoL (congenital glaucoma) and the OTI (congenital cataract), were identified. Most of the information collected referred to the parents' opinion concerning professional services, their needs and worries, the impact of VI on their emotional well-being and the strategies to assist parents to cope and adjust to the situation. Conclusions: The experience of caring for a child with VI is mainly influenced by psychosocial factors. Information and guidance to understand the child's visual condition are insufficient, and the available resources reinforce concerns of caregivers regarding the child's opportunities, expressed as negative emotional reactions.en
dc.format.mimetypeapplication/pdf-
dc.language.isoeng-
dc.publisherResearch in Developmental Disabilities-
dc.relation.urihttps://upcommons.upc.edu/bitstream/2117/122301/1/Quality%20of%20life%20among%20parents.pdf-
dc.rightsCC-BY-NC-ND-
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/3.0/es/-
dc.subjectVisual impairmenten
dc.subjectChildrenen
dc.subjectAdolescentsen
dc.subjectParentsen
dc.subjectCaregiversen
dc.subjectQuality of lifeen
dc.subject.lcshQuality of lifeen
dc.subject.lcshCaregiversen
dc.subject.lcshChildrenen
dc.subject.lcshTeenagersen
dc.titleQuality of life among parents of children with visual impairment: A literature review-
dc.typeinfo:eu-repo/semantics/article-
dc.typeinfo:eu-repo/semantics/submittedVersion-
dc.audience.educationlevelCalidad de vidaes
dc.subject.lemacQualitat de vidaca
dc.subject.lemacCuidadorsca
dc.subject.lemacInfantsca
dc.subject.lemacAdolescentsca
dc.subject.lcshesCuidadoreses
dc.subject.lcshesCalidad de vidaes
dc.subject.lcshesNiñoses
dc.subject.lcshesAdolescenteses
dc.rights.accessRightsinfo:eu-repo/semantics/openAccess-
dc.identifier.doi10.1016/j.ridd.2018.08.013-
Appears in Collections:Articles

Files in This Item:
File Description SizeFormat 
Qualitylifeparents.pdf293.73 kBAdobe PDFView/Open

This item is licensed under a Creative Commons License Creative Commons