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Title: Cuidatge informal d'infants i adolescents amb discapacitat visual: afectació en la qualitat de vida dels pares i anàlisi de pàgines web com a recursos per a l'alfabetització
Author: LUPÓN, MARTA  
Director: Armayones Ruiz, Manuel  
Cardona Torradeflot, Genís
Keywords: visual impairment
informal caregivers
quality of life
Issue Date: 7-Apr-2022
Publisher: Universitat Oberta de Catalunya (UOC)
Abstract: The purpose of the research was twofold: first, to analyse the impact that caregiving for children with visual impairment (VI) has on parents' quality of life (QoL) (qualitative approach, in the context of Catalonia); and second, to present objective data on the quality of web pages in Spanish providing information on VI in children and adolescents, in terms of reliability and readability. To achieve the first goal, an observational study was conducted by means of in-depth interviews. To attain the second goal, an observational study was conducted focusing on web pages with information regarding VI in children and adolescents. To evaluate the quality of web pages, a synthetic quality index is suggested, based on objective indicators of reliability and readability. In conclusion, parents' informal caregiving for children and adolescents with VI negatively affects all domains of their QoL. Furthermore, the quality of web pages in Spanish with information on this subject is not good; with these being a potential resource for literacy, care should be taken to reverse the weaknesses pointed out.
Language: Catalan
Appears in Collections:Doctoral Thesis

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